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Community Resources

 

A Wish With Wings, Inc.

P.O. Box 3457

Arlington, TX 76101

(817) 469-9474

A Wish with Wings, Inc. enables children ages 3-16, who have life-threatening illnesses, to live out a special, age-appropriate wish that might be financially impossible without assistance. Wish requests for younger or older children are conditionally accepted for review. Assistance is available to others in starting groups for wish fulfillment.

 

About Faces Permanent Cosmetics

1001 Bridgeway Blvd., Suite 432

Sausalito, CA 94965

(415) 331-0663

About Faces Permanent Cosmetics specializes in permanent cosmetic application, a process in which pigments are applied to the eyelids, eyebrows and lips (a form of tattooing) to match skin tone. The process is used for alopecia (loss of facial and body hair).


Acoustic Neuroma Association

P.O. Box 398

Carlisle, PA 17013

(717) 249-4783

Fax (717) 249-0353

Patient support organization for those who have had acoustic neuroma (an inner ear tumor) or other tumors affecting cranial nerves and neural tissue. Provides rehabilitation information. Encourages research and public awareness. Fee: $20.00 annual donation requested.


Aesfedmed Alert

AES Alarms, Inc.

2400 West Cypress Creek Road

Ft. Lauderdale, FL 33309

(800) 940-8880

AES FedMed Alert is a national 24-hour personal emergency system activated by pressing a button on a pendant or hand-held remote. If a patient starts the alarm, the AES Central Monitoring Station responds instantly by calling the home, determining whether the patient is in need of assistance, and contacting the appropriate persons or facilities. Costs include an initial installation fee and a monthly monitoring fee. Contact AES for further information.

 

Aims Media

9710 DeSoto Avenue

Chatsworth, CA 91311-4409

(888) 892-3484

AIMS Media offers videos for patient and professional education including videos on radiation and chemotherapy. Call or write for information.


Air Ambulance America

9100 S. Daddand Blvd.

Miami, FL 3156

(800) AMBULANCE

(800) 262-8526

Air Ambulance America provides air transportation for cancer patients. Complete bedside transfer available, with nurses and doctors there, if necessary.


Airway

3960 Rosslyn Drive

Cincinnati, OH 45209

(800) 888-0458

Airway manufactures a line of breast prostheses called "The Portrait Group" along with fitting aids, brassieres and swimsuits. Call Airway to find a dealer near you.


Alkin Hair Company

264 West 40th Street

New York, NY 10018

(212) 719-3070

Alkin Hair Company matches hair samples that can then be woven, braided or used for extensions. Call for more information and cost.


AMC Cancer Research Center

Cancer Information and Counseling Line

Cancer Intervention Division

1600 Pierce Street

Denver, CO 80214

(303) 233-6501 (Colorado)

(800) 525-3777

The AMC Cancer Research Center (AMC) is dedicated to cancer prevention and control research. The work of AMC includes basic laboratory investigation, clinical research, and the design, implementation and evaluation of community interventions. AMC studies focus, in particular, on modifying lifestyle factors that affect cancer risk such as diet and tobacco use. In addition, AMC operates the Cancer Information and Counseling Line that provides information on symptoms, treatment, support groups and other valuable resources such as financial aid and transportation services.


American Academy of Pain Management

3600 Sisk Road, Suite 2D

Modesto, CA 95356

(209) 545-0754

Fax: (209) 545-2920

The nonprofit American Academy of Pain Management is the largest society of pain practitioners in the United States. The AAPM offers education for health professionals and will supply names to patients of AAPM certified pain management professionals. The AAPM has also developed two booklets, Learning to Live with Pain and Conquering Chronic Pain, which are available to patients. Call for further information.


 

American Automobile Association (AAA) 1000 AAA Drive

Heathrow, FL 32746

(407) 444-7000

AAA publishes a guide, The Handicapped Driver's Mobility Guide, intended to aid disabled drivers in the task of finding equipment and locating services to improve their mobility. Information about adaptive equipment, driver training, related services and publications are included. Guides can often be obtained through your local AAA office (stock # 3772) or by calling AAA headquarters to order your copy.


American Brain Tumor Association

3725 North Talman Avenue

Chicago, IL 60618

(312) 286-5571

The Association for Brain Tumor Research, consisting of patients, family members, and professionals, supports research, promotes the understanding of brain tumors, and offers printed educational materials. The Association raises funds for brain tumor research through grants and awards. The Association can also refer patients and families to support groups for brain tumor patients. The Association for Brain Tumor Research publishes a tri annual newsletter on research and treatment.

Fee: None.

 

American Cancer Society

1599 Clifton Road, N.E., Atlanta, GA 30329, (404) 320-3333

777 Third Avenue, New York, New York 10017,

Tower Place, 3340 Peachtree Road, NE, Atlanta, GA 30026

From other regions, (800) 227-2345 1-800-ACS-2345

The American Cancer Society (ACS) is a voluntary nationwide organization that offers a variety of services to cancer patients and their families including education, research, referrals (lists of local ontologists, support groups, patient services, and rehabilitation programs, information pamphlets, films, and educational displays, counseling, guidance, sickroom supplies and comfort items, and client transportation to hospital or treatment center for therapy , dressings, nursing, and homemaker and home health aide services). The ACS also is involved in cancer education and research. You can get additional information about ACS programs and services from the national headquarters or a local chapter (listed in the telephone book under American Cancer Society).


American Foundation for Urologic Disease

1120 N. Charles Street

No. 401 Baltimore, MD 21201

(800) 242-2383

FAX (301) 625-2390

Medical research/education organization concerned with urologic illnesses. Offers education programs to the public on such topics as childhood urologic problems and prostate cancer. Supports research.



American Lung Association

1740 Broadway

New York, NY 10019

(212) 315-8700

Fax (212)265-5642

Conducts community service projects, provides educational programs, and supports research.


American Red Cross

17th and D Streets, NW

Washington, D.C. 20006

(202) 737-8300

The American Red Cross is a network of local chapters that provides health education materials and programs, including courses designed to give individuals the skills needed to care for ill family members.



Better Together Club

c/o ConvaTec

P.O. Box 4291

Syosset, NY 11791-9706

(800) 422-8811

The Better Together Club is a nationwide club for ostomates created and funded by ConvaTec, an ostomy supply firm. The Club gives its members such benefits as discounts on food, travel and entertainment, and a quarterly newsletter containing information on the latest medical and product news, travel hints, athletic tips, contests, and personal accounts of the emotional and practical aspects of living with an ostomy. Call or write to join or obtain further information.

Fee: None.


Breast Cancer Advisory Center

P.O. box 224

Kensington, MD 20895

Fax (301) 949-1132

Information clearing house on breast cancer. Provides referral service. Features library, lectures, and informative materials.

 

Breast Health Information Centre

This site on the A to Z of breast health is part of the Radiology Malaysia Homepage.  www.radiologymalaysia.org/breasthealth


Bristol-Myers Indigent Patient Assistance Program

Bristol-Myers Oncology Division

2404 West Pennsylvania Street

Evansville, IN 47721

Provides marketed oncology products free of charge to clients with financial need. Request must be made by the client's physician to Bristol-Myers Oncology Division or its local representative.

 

Bruce Medical Supply

411 Waverly Oaks Road

P.O. Box 9166, Dept. 037

Waltham, MA 02254

(800) 225-8446

Bruce Medical Supply offers an inventory of colostomy and other medical products in a variety of sizes and styles. Call or write for a free catalog.


Cancer Information Service: 1-800-4-CANCER 1-800-422-6237 1-800-638-6694

Boy Scout Bldg., Room 340, 9000 Rockville Pike, Bethsaida, MD 21892, (301) 496-8664, Fax (301) 402-0555

National Cancer Institute, Executive Plaza North, Room 239C, Bethesda, MD 20892

NCI-supported Cancer Information Service is a nationwide telephone service that answers questions from cancer patients and their families, health care professionals, and the public. Information specialists can provide information and publications on all aspects of cancer. They also may know about cancer-related services in local areas. Spanish-speaking staff members are available to callers from the following areas (daytime hours only): Florida, California, Georgia, Illinois, New Jersey (area code 201), New York, and Texas. By dialing the CIS number, you will be connected to the CIS office serving your area.

This toll free hotline is a nationwide service to give information to cancer patients, families, and health care professionals. Information can be given over the phone or sent out by mail to answer questions on cancer. Current printed materials on prevention, treatment, types of cancer, and local resources and services can be provided in English and Spanish. It provides support, understanding, and rapid access to the latest information on cancer and local resources. Cancer Information Service units are located and associated with the major cancer centers throughout the country. The Cancer Information Service is funded by the National Cancer Institute through contracts with designated comprehensive cancer centers and, in many areas, with the cooperation of the American Cancer Society. Trained staff members provide information on:

Causes of cancer

How to help prevent cancer

Methods used for detection, diagnosis, and treatment

Availability of medical facilities, home care, and rehabilitative services

Availability of financial assistance

Emotional support and counseling services

Appropriate referrals regarding investigational treatments

Further information can be obtained by calling the Cancer Information Service listed in the local telephone directory.

Cancer study groups are located throughout the country and in the comprehensive cancer centers. Nurses should write to the local comprehensive cancer center or make a telephone call to the National Cancer Institute to find out which comprehensive cancer centers have study groups investigating and conducting research on a given illness.

 
Cancer Treatment - Research - Cancer Prevention - Alternative Treatments

 

Url: www.apjohncancerinstitute.org

 

Description: A.P. John Cancer Institute, specializing in alternative cancer treatments and research including colon, prostate, liver and lung cancer treatments and more.

 

Candlelighters

1312 18th St., N.W., Suite 200, Washington, D.C. 20036

Childhood Cancer Foundation, Inc., 1901 Pennsylvania Avenue N.W., Washington, D.C. 20006

(800) 366-2223

In Canada:

Box 328, 9 Church St.

Stanstead, QC JOB 3EO

(819) 876-7676

Candlelighters is an organization formed by parents of young cancer patients. It helps families of pediatric and adolescent cancer patients cope with the emotional stresses of their experience. Candlelighters hold regular meetings to discuss problems and exchange information. In addition, the organization works to gain support for programs of cancer research and to stimulate local interest in the special concerns of pediatric and adolescent cancer patients and their families. There are more than 25 groups throughout the world, some of which are associated with a local ACS or CCS chapters. Maintains communication between parents and professionals through a quarterly newsletter, youth newsletter, bibliography, and resource guide. Assists in formation of local groups, which provide health care updates, exchange of practical information, moral support, and sharing of common problems and solutions. Metropolitan Washington, D.C. Candlelighters monitors legislation and federal programs affecting members. Speaker's bureau provided. In addition to parents, membership is open to anyone interested in the control and cure of childhood cancer.


Chemotherapy Foundation

183 Madison Avenue, Room 403

New York, NY 10016

(212) 213-9292

The Chemotherapy Foundation supports the development of drug treatments to control cancer through basic research, clinical studies, and improved application techniques. The Foundation conducts conferences, seminars, and publishes educational materials to help practicing physicians, clinical investigators and research scientists, grants endowments to postgraduate teaching programs in medical schools, works to educate the public about progress in chemotherapy and publishes a newsletter two to three times per year. A handbook for patients and their families called Chemotherapy Your Weapon Against Cancer is available through the Foundation. Other pamphlets and educational materials are also available.

Fee: None.


Children's Hospice International

700 Princess Street, Suite 3, Alexandria, VA 22314-2503

1101 King Street, Suite 131 Alexandria, VA 22314

(703) 684-0330

(800) 242-4453

FAX (703) 684-0226

A voluntary organization that acts as an international clearinghouse for information relating to care of the terminally ill child and his or her family. Provides lay information about terminal illness. Sponsors national, regional, and local seminars for health care professionals, volunteers, and families. Develops educational and training information for health care providers and assists in planning conferences, including provision of speakers. Serves as consultant for implementation of children's hospice programs. Publishes quarterly Children's Hospice International Newsletter. Membership open to terminally ill children and their families, health care professionals, and other interested persons. Annual membership fee is $25.00.


Cleo, Inc.

3957 Mayfield Road

Cleveland, OH 44121

(216) 382-9700

(800) 321-0595

CLEO, Inc. manufactures rehabilitation products and daily living aids for the physically challenged. Call the toll-free number listed above for a free catalog.



Color Me Beautiful Image Consultant

P.O. Box 3241

Falls Church, VA 22043

(800) 533-5503

Color Me Beautiful Image Consultants provides a color analysis service to help determine your seasonal approach to wardrobe planning. Consultants are available nationwide. Call for the location of the consultant nearest you.


Commonwealth Cancer Help Program

P.O. Box 316

Bolinas, CA 94924

(415) 868-0970

Commonwealth Cancer Help Program is a week-long intensive residential health promotion program for cancer patients and their family members or close friends. The program is not a cancer therapy, but a stress reduction, health education and support group program for small groups of cancer patients who are under the care of physicians for the treatment of their cancer. The program is primarily a yoga and meditation retreat adapted to the special needs of people with life-threatening illness. Commonwealth also offers classes on informed choice among conventional and complementary therapies, exposure to popular and professional cancer literature, instruction in diet and nutrition, support groups, massage, training in personal imagery, experiences with intentional touch, and artistic expression.


Corporate Angel Network (CAN)

Westchester County Airport

Building One

White Plains, NY 10604

(914) 328-1313

FAX (800) 328-4226

A nationwide program designed to give patients with cancer the use of empty available seats on corporate aircraft to get to or from recognized treatment centers. Transportation services offered by U.S. corporations that own aircrafts. One attendant or family member may accompany the patient without charge. Patient must meet certain self-care requirements and must have medical authorization for the flight. Clients must be able to walk and be in stable condition. There is no cost to the client, nor are there any financial need criteria. Requests for transportation should be made when a defined date for treatment or for discharge has been arranged. (Note: For Canada, see Mission Air.)


Designs for Comfort, Inc.

P.O. Box 8229

Northfield, IL 60093

(800) 443-9226

Designs for Comfort, Inc. has developed a combination cap and hairpiece called the "Headliner" as an alternative to wigs. The "Headliner" is available in a variety of colors and fabrics. This product may be reimbursed by individual insurance companies as a hair prosthesis. Call to order by mail or to find the dealer nearest you.


Eastern Biotech & Life Sciences

DNA Paternity Testing Services, Colon & Breast Cancer Detection.

www.easternbiotech.com 

 

ECAP
1302 Chapel Street

New Haven, CT 06511

(203) 865-8392

Fax: (203) 497-9393

ECAP offers books, videocassettes and audio cassettes on a variety of topics of interest to cancer patients. Call or write for a copy of their catalog.

 

Edgepark

4791 Turney Road
 
Cleveland, OH 44125
 
(800) 321-0591
 
Edgepark is a mail order supply house that carries most major brands of ostomy equipment. Edgepark will bill Medicare, private insurance and Medicaid. Call or write for a free catalog.


Eva Gabor International

765 South Harvard Avenue
 
Los Angeles, CA 90005

(800) 223-9812

Eva Gabor International wigs and hairpieces are available through many major department stores. Call for the location of the dealer nearest you.


Fred Sammmon's Inc.
 
Box 32

Brookfield, IL 60521

(708) 325-1700

(800) 323-5547

Fred Sammon's Inc. offers an "Enrichments" catalog containing a wide selection of living aids, including housekeeping, household, and personal care items for the medically-impaired.


Grandview Hospital and Medical Center Media Productions

P.O. Box 588

Dayton, OH 45405

(800) 426-3812

Grandview Hospital and Medical Center Media Productions offers patient and professional education videos relating to cancer and treatment.


Headcovers Unlimited, INC
Headcovers.com (www.headcovers.com) - Offers hats, turbans, over 400 styles of wigs, eyebrows, eyelashes, head scarves, headwraps, cosmetics for chemotherapy and bandannas. This site also offers resources such as scarf tying instructions and information on selecting wigs.

 

Headwear, Etc. .

Popular wig styles, hats, scarves, and headwear as well as our exclusive matchables clothing collection.  E-mail: marilyn@headwearetc.com Web:

 
Heart Connection

2116 Grant

Des Moines, IA 50312

(515) 243-6239

Overnight one-week camp, ages 5-19; siblings camp, ages 5-19; weekend camp for children ages 5-19 whose parents have cancer.
Fee: None

 
Holly Cosmetics/Medical Image Products

4947 Brownsboro Road

Louisville, KY 40220

(800) 222-3964

Holly Cosmetics/Medical Image Products offers a line of corrective cosmetics. Information about the Holly Cosmetics line and a video are available by mail. Call to order information and a video, or to find the consultant nearest you. Holly Cosmetics is involved in the "Look Good, Feel Better" program.


Hospice Association of America

519 C Street, N.E.

Washington, D.C. 20002

(202) 546-4759

FAX (202) 547-3540

Promotes the use of hospice care for terminally ill individuals. Provides hospice referral service, Medicare reimbursement assistance, and hospice start-up guidance. Holds AIDS workshops. Offers speakers' bureau.


J.C. Penney

14841 North Dallas Parkway

Dallas, TX 75240-6760

(800) 222-6161

J.C. Penney carries mastectomy bras, bathroom aids, canes, and other health care products and equipment. Visit your local J.C. Penney or call to order a catalog.


Kids on the Block, Inc.

9385-C Gerwig Lane

Columbia, MD 21046

(800) 368-KIDS (outside Maryland)

(800) 368-5437

Fax: (301) 290-9358

The Kids on the Block, Inc. is a program utilizing child-sized puppets designed to help individuals and groups around the world to teach children about disabilities, differences, and areas of social concern. The Kids on the Block form the core of a unique set of educational programs covering a variety of topics including cancer and pediatric hospice care. Fee: Call for information.


Leisure-Lift

1800 Merriam Lane

Kansas City, KS 66106

(800) 255-0285

Leisure-Lift offers several types of lifting easy chairs, including reclining, swiveling, and rocking models. Prices vary. Call for the location of a dealer near you.


Look Good, Feel Better

The Cosmetic, Toiletry and Fragrance Association, 1110 Vermont Avenue NW, Suite 800 Washington, D.C. 20005

(800) 395-LOOK


Look Good, Feel Better is a nationwide public service program developed by the Cosmetic, Toiletry and Fragrance Association (C.T.F.A.), the American Cancer Society, and the National Cosmetics Association. The program was designed to help persons recovering from cancer to enhance the quality of life through personal appearance and body image. The program offers nationwide educational services. Fee: None.


Lumex

100 Spence

Bay Shore, NY 11706

(800) 645-5272

LUMEX manufactures safety, comfort and convenience products, including living aids, bathroom safety items, walking mates, and commodes. Call for the names of dealers nearest you.


Make-a-Wish Foundation of America [National Office]

2600 North Central Avenue

Suite 936
 
Phoenix, AZ 85004

(800) 722-WISH (800) 722-9474

The purpose of this foundation is to grant wishes to children under the age of eighteen years who have a terminal illness, or who suffer from a medical condition sufficiently life-threatening to create a probability that the child will not survive beyond his or her eighteenth year. Funding and arrangements for the wish are provided by the foundation.


Medi-Lift Chairs

Penox Technologies, Inc.

P.O. Box 785

One Penox Plaza

Pittston, PA 18640-0785

(800) 233-3029

Penox Technologies manufacturers several styles of lifting and reclining easy chairs. Medi-Lift Chairs come in a variety of models including a chair for individuals weighing up to 400 pounds.


Medic Alert Foundation

P.O. Box 1009

Turlock, CA 95381

(800) 344-3226

The Medic Alert Foundation provides identification bracelets and cards to individuals with serious medical conditions. Medic Alert also maintains copies of medical records and other pertinent information.


Milner Fenwick

2125 Greenspring Drive

Timonium, MD 21093

(800) 638-8652

Milner Fenwick offers patient and professional education videos relating to cancer and treatment.



National Association for Home Care

519 C St. NE

Washington, D.C. 20002

(202) 547-7424

Has a booklet on how to select a home care agency.



National Cancer Institute (NCI)

Office of Cancer Communications

Building 31, Room 10A18

Bethesda, MD 20205 20892-4200

1-800-4-CANCER

The National Cancer Institute is a branch of the National Institutes of Health, which is part of the United States Department of Health and Human Resources. Its primary responsibility is to establish a goal for a systematic attack on cancer throughout the United States through a network of treatment centers. The major activities of the institute's treatment centers are setting standards for research facilities, sharing information, and funding research studies. Its activities include cancer drug development; research into causation, prevention, and treatment of cancer; programs on cancer control, prevention, and early detection; fellowships for education of professionals; and public and professional education (including Cancer Information Service). Clients who are receiving therapy as part of a clinical study may be housed free of charge at the hospital facilities of the NIH clinical center.



National Health Information Clearinghouse

P.O. Box 1133

Washington, D.C. 20013-1133

(800) 336-4797

The National Health Information Clearinghouse provides a telephone referral service with a comprehensive database of organizations and resources dealing with various health issues, including all forms of cancer. Call for the telephone referral number.
Fee: None.


National Hospice Organization (NHO) (United States)

1901 North Fort Myer Drive Suite 307

Arlington, VA 22209

(703) 243-5900

An independent national organization whose membership consists of groups providing hospice care and other professionals concerned with care of terminally ill clients and their families. Addresses issues such as standards and criteria for care, research and evaluation, reimbursement and licensure, professional liaison, and ethics. Educates the public about hospice care through telephone, general information, publications, workshops at regional and state levels, and an annual educational symposium. This organization is a private, nonprofit, membership organization divided into ten regions and state organizations. The National Hospice Organization is dedicated to promoting and maintaining quality care for terminally ill patients. Literature, films, and a directory of hospice programs are available through the organization.


National Leukemia Association

585 Stewart Ave.

Suite 536

Garden City, NY 11530

(516) 222-1944

Fax (516) 222-1944

Promotes research and public awareness of leukemia. Offers financial assistance to families in need. Provides referral service and children's services.



National Women's Health Network

1325 G Street N.W.

Washington, D.C. 20005

(202) 347-1140

The National Women's Health Network is a national consumer rights group focusing on women's health needs, including issues related to cancer. This advocacy group lobbies in Washington for the rights of women in the health care system. The National Women's Health Network maintains a small clearinghouse of information and may be a helpful resource for women with cancer. Fee: None.


Niagra Corporation

1100 Highway 27 South

Stanley, NC 28164

(704) 263-1451

The Niagara Corporation has developed the "Niagara Roamer," a three-wheeled, battery-powered chair for use on short errands (25 mile range on battery charge). Call Niagara for the location of a dealer in your area.



Outward Bound School of Maine

P.O. Box 429

Mechanic Street

Rockland, ME 04841

(207) 594-5548

This wilderness program offers courses of varying length especially designed for cancer patients based on the belief that individuals develop confidence, self-reliance, respect for others and compassion through challenge and shared adventure. The Outward Bound School of Maine accepts persons aged fourteen and older.  Determined by length of course selected.



P. K. Walsh

1842 Beacon Street

Brookline, MA 02146

(800) 624-4335

P.K. Walsh is a direct mail wig company that works closely with chemotherapy patients. Call to obtain a catalog.



Prosthetics for Hair Loss

174 Fifth Avenue

New York, NY 10011

(212) 206-6785

Prosthetics for Hair Loss is a specialized studio for custom-fitted wigs for chemotherapy, head trauma, and alopecia patients. Fittings are done by appointment at the New York location. This firm is approved by Blue Cross/Blue Shield.


R.A. Bloch Cancer Foundation

H and R Block Bldg.

4410 Main
 
Kansas City, MO 64111

(816) 932-8453

Operates the Cancer Hot Line, a telephone support system matching newly diagnosed cancer patients with volunteers with same diagnosis and directing them to the Cancer Management Center for second opinions.


Reach to Recovery (contact through local ACS or CCS office)

c/o American Cancer Society

1599 Clifton Rd., NE

Atlanta, GA 30329

(404) 320-3333

A group designed to meet the physical, psychological, and cosmetic needs of women who need or have had surgery for breast cancer. With physicians' consent, provides a trained volunteer who will visit the client and spouse before and after surgery (tylectomy, lumpectomy, mastectomy). Volunteer will teach and show rehabilitation exercises, discuss breast reconstruction surgeries and breast prostheses, answer personal questions, provide reassurance and support, and provide a temporary breast prosthesis if required. Volunteers who have undergone this operation visit such women and provide psychologic support, show rehabilitative exercises, and provide temporary prostheses.



Re-Mission

A fun and engaging video game developed by HopeLab for adolescents and young adults with cancer. The game is free to AYA’s with cancer  as well as health care providers. www.re-mission.net

 

Sears, Roebuck & Co.

P.O. Box 1530

Downer's Grove, IL 60515-9955

(800) 366-3000

Sears carries a line of health care supplies and equipment, including mastectomy bras, prostheses, bathroom aids, etc. Visit your local Sears or call to order a catalog.



Simonton Cancer Center

P.O. Box 890

Pacific Palisades, CA 90272

(800) 338-2360

The "New Patient Program" at the Simonton Cancer Center is based on a model for emotional intervention and support in the treatment of cancer patients. It evolved from the idea that beliefs, feelings, attitudes and lifestyles are important factors affecting health. The program is a five day educational and psychotherapeutic session for cancer patients and their support person. Participants engage in lifestyle counseling, and relaxation and mental imagery (creative thinking) exercises. Additionally, participants explore the role of stress, secondary gain, and other contributing factors to illness. Lecture tapes, books and professional papers are also available through the Center.
Fee: Call for information.


Skin Cancer Foundation

245 5th Avenue

Suite 2402

New York, NY 10016

(212) 725-5176

Foundation concerned with the prevention and early detection of skin cancer. Funds research and sponsors medical symposia. Provides public education programs. Assesses sun screen products for effectiveness as skin damage prevention agents.



The Transplant Foundation

8002 Discovery Drive, Suite 310

Richmond, VA 23229

(804) 285-5115

Provides grants to transplant recipients and acts as a referral service.


U.S. Department of Health and Human Services (HHS)

Provides information about financial assistance. For information, contact appropriate regional office:

Region II (NJ, NY, PR, Vls): 26 Federal Plaza, New York, NY 10278 (212) 264-4600

Region III (DE, DC, MD, PA, VA, WV): P.O. Box 13716, 3535 Market Street, Philadelphia, PA 19101 (215) 596-6492

 
Video Access

Southern Medical Association

P.O. Box 190088

Birmingham, AL 35219-0088

(800) 423-4992

Video Access offers patient and professional education videos relating to cancer and treatment.



Wainwright House Cancer Support Program

260 Stuyvesant Avenue

Rye, NY 10580

(914) 967-6080

The Wainwright House Cancer Support Program is a week-long intensive residential retreat devoted to health promotion, health education and stress reduction for those living with cancer. The emphasis is on education and experience that will contribute to increased autonomy, the management of pain, the relief of acute anxiety and depression, effective life planning and the making of informed choices among both conventional and complementary medical therapy. The retreats are open to men and women with cancer, their spouses and partners, or close support people. Participants must be under the care of an oncologist or other physician, be well enough to care for themselves in the Wainwright House environment and can benefit from the program.
Fee: Call for information.


Y-ME Breast Cancer Support Program, Inc.

1757 Ridge Road, Homewood, IL 60430

18220 Harwood Ave., Homewood, IL 60430

(800) 221-2141 weekdays

Fax (708) 799-5937

Outside calling area, (800) 221-2141 A nonprofit organization that provides information, hotline counseling, support, educational programs, and self-help meetings for patients with breast cancer and their families and friends. All of Y-ME's trained volunteers have had breast cancer treatment. Activities include:

(1) a telephone hotline manned by trained volunteers, who will answer questions and lend support;
(2) open-door educational meetings;
(3) a pre surgical counseling and referral service, including reading materials, referral to physicians and clinics that specialize in breast cancer diagnosis and treatment, resource materials on options, and prostheses and wigs (when available);
(4) a speaker's bureau and workshop presentation to impress women about the importance of early detection, teach breast self-examination, and discuss alternative methods of diagnosis and treatment;
(5) training for hotline volunteers; and
(6) assistance in development of local groups. Publishes Y-ME Hotline. Membership fee on a sliding scale.
 

Books


Anatomy of an Illness. Norman Cousins. Bantam Books, 1981.


And a Time to Live: Emotional Well-Being During Crisis of Cancer. Robert Chernin Cantor. Harper and Row, New York, 1978.


Beauty and Cancer. Diane Doan Noyes, Peggy Mellody, R.N. AC Press, Los Angeles, 1988.


Cancer. D. J. Herda. A Venture Book, 1989.



Cancervive: The Challenge of Life After Cancer. Susan Nessim and Judith Ellis. Houghton-Mifflin, 1991.



Choices: Realistic Alternatives in Cancer Treatment. Marion Morra and Eve Potts. Avon Books, New York, 1987.



A Comprehensive Guide for Cancer Patients and Their Families. Ernest Rosenbaum and Isabella Rosenblum. Palo Alto, CA, 1980.



Coping With Chemotherapy. Nancy Bruning. The Dial Press, New York, 1986.



Crackdown on Cancer. 2nd edition, Ruth Yale Long, Ph.D. Distributed by The Nutritional Education Association, Inc., P. 0. Box 20301, Houston, TX 77225. (713) 665-2946, 1989.



Death: The Final Stage of Growth. Elizabeth Kubler-Ross. Prentice Hall, Inc., New York, 1975.



Dr. Susan Love's Breast Book. Susan Love, M.D., with Karen Lindsey. Addison-Wesley, New York, 1990.



Explaining Death to Children. Earl A. Grollman. Beacon Press, Boston, 1967.



The Facts About Cancer. Charles F. McKhann. Spectrum Books, Prentice-Hall, Inc., New Jersey, 1981.



The Facts About Chemotherapy. Paul R. Reich, MD. Consumer Reports Books, 1991.



The Fall of Freddie the Leaf. Leo Buscaglia. Holt, Rhinehardt and Winston, New York, 1982.



From Victim to Victor. Harold Benjamin. Dell, 1987.



Getting Well Again. Carl Simonton, MD, et al. Bantam Books, 1978. [Also distributed by Simonton Cancer Center (800) 338-2360.]



A Guide to Good Nutrition During and After Chemotherapy and Radiation. 3rd edition, Saundra N. Aker and Polly Lenssen. Distributed by Clinical Nutrition Program, E211, Fred Hutchison Cancer Research Center, 1124 Columbia, Seattle, WA 98104 (206) 667-4834, 1988.



The Healing Family. Stephanie Mathews Simonton and Robert Shook. Bantam Books, 1978.



Home Health Care: A Complete Guide for Patients and Their Families. Jo-Ann Friedman. Norton, New York, 1986.



The Home Health Care Solution: A Complete Consumer Guide. Janet Zhun Nassif. Harper & Row, New York, 1985.



Want to Grow Hair, I Want to Grow Up. I Want to Go to Boise. Erma Bombeck. Harper & Row, New York, 1989.



In Sickness and In Health: How to Cope When Your Loved One is Ill. Earl A. Grollman. Beacon Press, Boston, 1987.



It's Always Something. Gilda Radner. Simon & Schuster, New York, 1989.



It's Not Valentine's Day. Louis A. Josof and Barbara C. Traylor. Parthenon Press, Nashville, TN, 1986.



Living With Cancer. Mary Beth Moster. Tyndale House Publishers, Inc., 1985.



Living with Lung Cancer. 2nd Ed., Barbara G. Cox, David T. Carr, M.D. and Robert E. Lee, M.D. Triad Publishing Co., 1987.



Love. Medicine & Miracles. Bernie S. Siegel, M.D. Harper&Row, New York, 1987.



The Macrobiotic Way: The Complete Macrobiotic Diet and Exercise Book. Michio Kushi. Avery



Publishing Group, Inc., Wayne, NJ, 1985.



Make Sure You Do Not Have Breast Cancer. Philip Strax, M.D. St. Martin's Press, 1989.



Minding the Body, Mending the Mind. Joan Borysenko, Ph.D. Addison-Wesley Publishing Co., New



York, 1987.



More Than You Dare to Ask: The First Year of Living with Cancer. Mac N. Turnage and Anne Shaw. John



Know Press, Atlanta, GA, 1976.



No Less A Woman. Deborah Kuhane. Prentice Hall Press, New York, 1990.



On Children and Death. Elizabeth Kubler-Ross. McMillan Publishing, New York, 1983.



On Death and Dying. Elizabeth Kubler-Ross. McMillan Publishing Co., New York, 1969.



The Ostomy Book: Living Comfortably With Colostomies, Ileostomies and Urostomies. Barbara Dorr



Mullen and Kerry McGinn, R.N. Bull Publishing Co., Palo Alto, CA, 1980. (Also distributed by United



Ostomy Association, Inc.)



The Power Within: True Stories of Exceptional Patients Who Fought Back With Hope. Wendy Williams.



Harper & Row, New York, 1990.



Put Your Mother on the Ceiling. Richard DeMille. Penguin Books, 1977.



Relative Risk: Living With A Family History of Breast Cancer. Nancy C. Baker. Viking Penguin, 1991.



Relaxation and Mental Imagery as Applies to Cancer Therapy. Carl Simonton, M.D. [Distributed by



Simonton Cancer Center (800) 338-2360], 1989.



The Relaxation Response. Herbert Benson, M.D. Avon Books, New York, 1976.



The Road Back to Health: Coping With the Emotional Side of Cancer. Neil A. Fiore. Bantam Books, 1986.



Seeing With the Mind's Eye: History, Techniques and Uses of Visualization. Mike Samuels, M.D. and



Nancy Samuels. Random House, New York, 1980.



Some Things Change and Some Things Stay the Same. Family Communications, Inc., 1989. (Available through the American Cancer Society.)



Spinning Straw Into Gold. Ronnie Kaye. Lamppost Press, Inc., 1991.



Spirit and Breath. (An exercise book for lung cancer patients.) Morton Leibling. 8210 Elmwood Avenue, Suite 209, Skokie, IL 60077 (708) 673-1384.



Stress Management: A Comprehensive Guide to Wellness. E.A. Charlesworth and R.G. Nathan. Atheneum Books, 1984.



Successful Living With Chronic Illness. Kathleen Lewis. Avery, Wayne, NJ, 1985.



Surviving Cancer: A Practical Guide for Those Fighting to Win! Danette G. Kauffman. Acropolis Books, 1989.



Talking About Death: A Dialogue Between Parent and Child. Earl A. Grollman. Beacon Press, Boston, 1971.



These Special Children: The Ostomy Book for Parents of Children with Colostomies, Ileostomies and



Urostomies. Katherine Jeter, Ed.D, ET. Bull Publishing Co., 1982. (Also distributed by United Ostomy



Association, Inc.)



To Be the Hands of God. One woman's journey, one congregation's challenge. Judy Griffith Ransom with James G. Henderson. Upper Room Books, 1992.



Triumph: Getting Back to Normal When You Have Cancer. Marion Morra and Eve Potts. Avon Books, New York, 1990.



Understanding Cancer. John Laszlo M.D. Harper & Row, New York, 1989.



Up Front: Sex and the Post Mastectomy Woman. Linda Dackman. Prentice Hall Press, New York, 1990.



Visualizations: Directing the Movies of Your Mind. Adelaide Bry. Barnes and Noble, San Francisco, 1978.



We are Not Alone: Learning to Live With Chronic Illness. Sefra Kobrin Pitzele. Thompson & Company, Inc., Minneapolis, 1985.



When Bad Things Happen to Good People. Herbert Kushner. Simon & Shuster, New York, 1983.



Who Dies? Stephen Levine. Doubleday, 1989.



Why Me? Rose Kusher. W.B. Saunders Co., 1982.



Women Talk About Breast Surgery. Amy Gross and Deeto. Clarkson Potter, 1990.



Working it Through. Elizabeth Kubler-Ross. Macmillan Books, 1982.



You and Leukemia - A Day at a Time. Lynn S. Baker, M.D. W.D. Saunders Co., Philadelphia, 1978.



A Consumer Guide to Hospice Care. Barbara Colemen, Program Coordinator. National Consumers League, 815 15th Street, N.W., Suite 516, Washington, D.C. 20005, 1990. (202) 639-8140.



Back to School: A Handbook for Parents of Children With Cancer. American Cancer Society, 1988.



The Breast Cancer Digest: A Guide to Medical Care, Emotional Support, Educational Programs and Resources. Available from the National Cancer Institute, Office of Cancer Communications, Building 31, Room 1OA18, Bethesda, MD 20205, NIH Publication No. 84-1691.



Caring for the Patient with Cancer at Home: A Guide for Patients and Families. Barrie R. Cassileth, ed., American Cancer Society, 1988.



Chemotherapy and You: A Guide to Self-Help During Treatment. NIH Publication No. 85-1136, National Cancer Institute, Bethesda, MD 20892.



Communication Between You, the Cancer Patient, and Your Doctor. A conversation with a doctor who is also a cancer patient. Cancer Information Service, Sylvester Comprehensive Cancer Center, Box 016960 (D8-4), Miami, FL 33101 or (305) 548-4821.



Eating Hints: Recipes and Tips for Better Nutrition During Cancer Treatment. NIH Publication No. 842079, National Cancer Institute, Bethesda, MD 20892.



Help Yourself: Tips for Teenagers With Cancer. U.S. Department of Health and Human Services, Public Health Services, National Institutes of Health, National Cancer Institute, Publication No. 87-2211.



Helping Children Understand: A Guide for a Parent with Cancer. American Cancer Society, 1986.



Hospice Benefits Under Medicare. Available from local Social Security Administration offices or call (800) 772-1213. Publication HCFA-02154, updated annually.



How to Select a Home Care Agency. National Association for Homecare, 519 C Street, N.E., Washington, D.C. 20002.



It Helps to Have Friends When Mom or Dad Has Cancer. American Cancer Society, 1987.



Radiation Therapy and You: A Guide to Self-Help During Treatment. National Cancer Institute, Bethesda, MD 20892, 1985.



Sexuality & Cancer: For the Man Who Has Cancer, and His Partner. Leslie R. Schover, Ph.D., ed. Michael Randers-Pehrson. American Cancer Society, 1988.



Sexuality & Cancer: For the Woman Who Has Cancer, and Her Partner. Leslie R. Schover, Ph.D., ed. Michael Randers-Pehrson. American Cancer Society, 1988.



Taking Time: Support for People with Cancer and the People Who Care About Them. U.S. Department of Health and Human Services, National Institutes of Health, Publication No. 83-2059.



Talking With Your Child About Cancer. U.S. Department of Health and Human Services, Public Health Services, National Institutes of Health, Publication No. 87-2761.



Talking With Your Doctor. American Cancer Society, Publication No. 4636, 1987.



What is Chemotherapy? American Cancer Society publication.



When Cancer Recurs: Meeting the Challenge. U.S. Department of Health and Human Services,



National Institutes of Health, NIH Publication No. 85-2709.



When Someone in Your Family Has Cancer. U.S. Department of Health and Human Services, Public



Health Service, National Institutes of Health, National Cancer Institute, Publication No. 88-22685.



When Your Brother or Sister Has Cancer. American Cancer Society, 1984.



Love, Medicine and Miracles. Bernie Siegel.



Emmanuel' s Book. Pat Rodegast.



Playfair. Matt Weinstein and Joel Goodman.



The New Games Book. Andrew Fluegelman



Learning to Love Yourself. Sharon Wegscheider.



The Dance of Anger. Harriet Coldhor Lerner.



You Can Heal Your Life. Louise Hay.



The Drama of the Gifted Child. Alice Miller.



Facing Shame. Marilyn Mason.



One More Time. Carol Burnett.



Cancer Manual. American Cancer Society, 1936.



Beyond the Relaxation Response. Herbert Benson, MD.



Imagery in Healing. Shamanism and Modern Medicine, by Jean Acterberg.



Listen to Your Pain. The Active Person's Guide to Understanding, Identifying and Treating Pain and Injury, by Ben Benjamin, Ph.D. and Gale Borden, MD.



Love, Medicine and Miracles. Bernie S. Siegel, MD.



Mind as Healer, Mind, as Slayer. Kenneth R. Pelletier.



Minding the Body, Mending the Mind. Joan Borysenko, phD.



Peace, Love and Healing. Bernie S. Siegel, MD.



Quantum Healing. Exploring the Frontiers of Mind/Body Medicine, by Depak Chopra, MD.



Relaxation Response. by Herbert Benson, MD.



You Can Fight for Your Life. Emotional factors in the treatment of cancer, by Lawrence LeShan.



You Can Heal Your Life. by Louise Hay.



The Alternative Health Guide. by Brian Inglis and Ruth West.



Everybody's Guide to Homeopathic Medicines. by Stephen Cumminngs and Dana Ullman.



Hands of Light. by Barbara Ann Brennon.



Health for the Whole Person. The complete guide to holistic medicine, ed. by Arthur C. Hastings, Ph. D., James Fadiman, Ph. D., and James S. Gordon, M.D.



Health:A Holistic Approach. How to maintain a state of health in body, mind and spirit by Dennis Chernin, M.D., and Gregory Manteuffel, MD.



Holistic Medicine. From Stress to Optimum Health by Kenneth R. Pelletier.



Living Well. A Twelve-Step response to chronic illness and disablitlity by Martha Cleveland.



The Power to Heal. An investigation of healing and the healing experience by David Harvey.



Practical Encyclopedia of Natural Healing. ed. by Mark Bricklin, Rodale Press.



Sound Health. The Music and Sounds that Make Us Whole, by Steven Halpern with Louis Savary.



The Tao of Medicine. Ginseng, Oriental Remedies and the Pharmacology of Harmony, by Stepen Fulder.



Therapeutic Touch. A Practical Guide by Janet Macrae.



Tibetian Art of Healing. by Theodore Burang.



The Web That Has No Weaver. Understanding Chinese Medicine, by Ted. J. Kaptchuk, O.M.D.



Whole Body Healing. Natural Healing with Movement Exercise, Massage and Other Drug Free Methods, by Carl Lowe and James W. Nechas, Rodale Press.



Diet for a New America. by John Robbins.



Healing with Herbs: Nature's Way to Better Health. by Henrietta A. Diers Rau.



Practically Macrobiotic. by Keith Michell.



The Art of Meditation. by Joel Goldsmith.



The Art of Spritual Healing. by Joel Goldsmith.



Commentaries on a Course in Miracles. by Tara Singh.



How to Learn From a Course in Miracles. by Tara Singh.



The Gift of Inner Healing. by Ruth Carter Stapleton.



Goodbye to Guilt- Releasing Fear through Forgiveness. by Gerald G. Jampolsky, MD.



A Gradual Awakening. by Stephen Levine.



How Shall I Live. Transforming Surgery or Any Health Crisis Into Greater Aliveness, by Richard Moss, MD.



Illness as a Metaphor. by Susan Sontag.



Love is Letting Go of Fear. by Gerald Jampolsty, MD.



The Miracle of Mindfulness. A Manual on Meditation, by Thich Nhat Hanh.



Notes to Myself. by Hugh Prather.



One More Day. Daily Meditations for People with Chronic Illness, by Sefra Kobrin Pitzele.



Out of Darkness, Into the Light. A Journey of Inner Healing, by Gerald G. Jampolsky, MD.



A Parenthesis in Eternity. Living the Mysical Life, by Joel Goldsmith.



Personhood, The Art of Being Fully Human. by Leo Buscaglia, Ph.D.



Reflections in the Light. Daily thoughts and affirmations, by Shakti Gawain.



The Road Less Traveled. by M. Scott Peck.



Self esteem. by Virginia Satir.



The Three Minute Meditator. by David Harp and N.S. Feldman, Ph.D.



The Dance of Anger. by Harriet Goldhor Lerner.



The Be-happy Attitudes. by Robert Schuler.



Feeling Good. The New Mood Therapy, by David D.Burns, MD.



The Healing Family. by Stephanie Matthews Simonton.



Other Lives, Other Selves. by Roger Woolger, Ph.D.



Risk to be Healed. by Joyce and Barry Vissel, MD.



A Time to Heal. the Road to Recovery for Adult Children of Alcoholics, by Timmen L. Cermak, MD.



To Love is to Be Happy With. by Barry Neil Kaufman.



When Bad Things Happen to Good People. by Harold S. Kushner.



Meeting at the Edge. by Stephen Levine.



On Death and Dying. by Elizabeth Kubler-Ross.



Questions and Answers on Death and Dying. by Elizabeth Kubler-Ross.



When Parents Die. A Guide for Adults, by Edward Myers.



Who Dies? by Stephen Levine.



First You Cry. by Betty Rollin.



You Can Save Your Breast. One woman's experience with radiation therapy, by Larry and Valere Althouse.







Magazines and Newsletters



Cancer Weekly, 206 Roger Street, N.E., Atlanta, GA (404) 377-8895.



Cope, 12600 W. Colfax, Suite B-400, Denver, CO 80215. 1-800-343-COPE.



Coping Magazine, 7000 Executive Center Drive, Suite 120, Brentwood, TN 37027 (615) 371-8474.



Helping Hand, (Melanoma Newsletter) 12 Arlington Street, Portland, ME 04101.



The Mind-Body Health Digest, The Institute of the Advancement of Health, 16 East 53rd Street, New



York, NY 10022 (212) 832-8282.







Videotapes and Audiotapes



Best Look Forward. 1800 Lombard Street, Philadelphia, PA 19146 (215) 893-7550.



Childhood Cancer: Siblings Speak Out. Crystal Productions, 1812 Johns Drive, Box 2159, Glenview, IL 60025.



(800) 255-8629 or (708) 657-8144.



Childhood Cancer: Patients Speak Out. Crystal Productions, 1812 Johns Drive, Box 2159, Glenview, IL 60025



(800) 255-8629 or (708) 657-8144.



Fight for Your Life: Survival Techniques for Those With Cancer. Varied Directions, Inc., 69 Elm Street, Samden, ME 04843 (800) 888-5236.



Getting Well. Available through the Simonton Cancer Center (800) 338-2360.



How to Meditate. Available through the Simonton Cancer Center (800) 338-2360.



Laughter Therapy. The Allen Funt Fund, P.O. Box 827, Monterey, CA 93942, (408) 625-3788.



Learning to Control Pain. American Psychological Association, Psychology Today Tape Program, Department PTC 82, Box 059061, Brooklyn, NY 11205; to order (800) 345-8112, for customer service (212) 242-2460.



Mr. Rogers Talks About Childhood Cancer. Family Communications, Inc., 1989.



Patients and Doctors: Communication Is a Two-Way Street. Send check or money order to "Patients and Doctors," c/o Natalie Davis Spingarn, 1409 29th Street NW, Washington, D.C. 20007, or call (202) 3389196.



VHS/Beta $29.95, U-Matic $39.95.



Rainbow Butterfly: An Introduction to Visualization. Emmett E. Miller, M.D. 945 Evelyn, Menlo Park, CA 94025. (415) 328-7171.



Relaxation and Imagery for the Person with Cancer. Lynn Brallier. Available through the Stress/Health Management Center, 621 Maryland Avenue N.E., Washington, D.C. 20002.



Relaxation and Inspiration. Emmett E. Miller, M.D. 945 Evelyn, Menlo Park, CA 94025, (415) 328-7171.



Relaxation and Mental Imagery as Applies to Cancer Therapy. Available through the Simonton Cancer Center



(800) 338-2360.



The Healing Power of Laughter and Play. Available through the Simonton Cancer Center, (800) 338-2360.